ticketyboo-tourettes@hotmail.com 
The blog has been very quiet these past few months, partly as we were busy buying a house and undertaking renovating projects. Another reason is I was awaiting a firm update from CAMHS. Back in January George had a routine medication review at CAMHS, during this meeting we mentioned concerns about George’s behaviour and sleep … Read more
“Labelling” your child is a controversial subject with a lot of people feeling strongly about it. We recently attended a talk on ADHD and the subject came up of why people feel the need to have a label. We have always wanted a “label” for George, let me explain why we felt this was important. … Read more
Wow, this morning really drummed everything home once again. It is so hard finding out your child has Tourette’s, at the time the tics and the uncertain future were a huge worry. Actually, now the tics are just part of George and really are the very least of our problems. The thing I find the … Read more
We have had a very busy few months in the Tourette tales household. Christmas is a big deal in our house with preparations starting early. This year, due to shortage of tickets our annual trip to see Father Christmas in the Harrod’s Grotto was in mid November. This was our 10th visit to the grotto … Read more
Holidays can always be a worry, the lack of routine, different places to visit can be difficult. This half term we had lots planned, we caught up with friends at the local farm and George got a chance to do some pond dipping. This was a really lovely day and he coped well despite being … Read more
Whilst having a sort out of the children’s artwork and school work they’ve brought home, I came across this Poem. In year 2 George’s topic was Superheroes, at the end of the topic he took part in a class assembly and read out the poem. I thought it was very appropriate for all those fighting … Read more
In September we began our search for a secondary school even though it doesn’t seem five minutes since he started nursery school. As George has a statement of special educational needs, we have begun to look around now, at the start of year five rather than year six. This is so we can have our school choices and … Read more
Sometimes we forget about George’s difficulties, his behaviour and tics are just part and parcel of everyday life for us. Then something happens that bring it all back into focus and my heart breaks all over again when I see how hard things can be for him. George has had a love of penguins ever … Read more
One we’d had time to process the diagnosis, we had to make the decision on whether or not to medicate to help control the tics. We spent a while discussing the options. We included George in this decision and we all decided to try Clonidine. To see George in pain and crying with his mouth tics, … Read more
Following the diagnosis we explained things to George and to our surprise he took the news really well. He was confused the first few days and told everybody he had “twits”. He was so pleased to be able to tell people “I can’t help it”, I also found the way people reacted to George changed … Read more